A buggy for a 12 year old with Rett Syndrome

This 12 year old girl who has Rett syndrome lives with her mum and dad and 2 older sisters in Spelthorne, She is non verbal and is limited with her hand use. She relies on 24hrs adult carers, she wears pads, as she is not able to use the toilet independently.

Alongside Retts Cerys has the following additional complex needs:

  • ADHD Attention deficit hyperactivity disorder
  • ASD Autism spectrum disorder
  • ODD
  • Oppositional defiant disorder
  • Anxiety 
  • Epilepsy.

Shes is in need of  a buggy to help her maintain her independence and to assist her family with her mobility and getting out and about on family trips.

Funding for a local charity to provide a new additional service

CREST has changed greatly over the last 2 years due to Covid, in the way we work and communicate with our membership (Cancer Patients and Carers plus interested parties.)   We are now considered much more as a medical need in the community. We also are wanting to secure a new service = Indian Head Massage at a reduced rate of £10 that is desperately needed by our patients. As we don’t currently have the funding to start this service it is paused until we secure funds.  So far approx 30 patients have been identified as needing this, but we know there is a greater demand for others to access it once we advertise the service to the fuller membership.   Securing this grant will ensure our patients continue to receive the vital treatments they need.   It will also enable us to expanded treatments to waiting patients . Indian Head Massage is beneficial to patients undergoing chemo especially with cold caps. The main benefits are as follows: Aids in the Relief of Migraines Promotes Hair Growth Stimulates Lymphatic Drainage Relieves Insomnia and Fatigue Relieves Symptoms of Anxiety and Depression Renews Energy Levels Boosts Memory Capabilities Boosts General Wellbeing